长沙市蝴蝶之家儿童舒缓护理中心

Butterfly Children’s Hospices (BCH), is a UK registered charity which works in cooperation with the government to provide and promote children’s hospice and palliative care services in China. We provide loving care and treatment for children with life-threatening illness or life-limiting conditions in China and support for their families, where they have them, to prevent abandonment. We have established a model of children’s palliative care hospice in Changsha that is able to be replicated, promoting the concept that every life is a gift and valuable. 
蝴蝶之家是一家在英国注册的慈善机构，通过与民政局合作在国内建立了能提供和推广儿童临终舒缓护理服务的实体机构- 长沙市蝴蝶之家儿童舒缓护理中心，我们为国内的重症和生命周期有限的儿童提供舒缓关爱和临终关怀护理服务，期望能支持到他们的家庭，降低弃婴率。通过我们在湖南长沙建立的第一家可复制性的儿童舒缓护理中心的模式，希望能推广蝴蝶之家的理念，即每个生命都是一份值得珍惜的礼物。

The first Butterfly Home opened in April 2010, with the aim of caring for any child who had a life expectancy of fewer than six months. The home can provide care for up to 18 abandoned babies and children plus a three-bed high-dependency unit for very sick children and newborns.  
2010年四月，第一家蝴蝶之家儿童舒缓护理中心正式开始运作，目标是护理生命周期可能不足六个月的重症儿童。现在的蝴蝶之家有18张床在使用，并有一间特别护理室备有三张床专门照顾病情特别严重的儿童和新生儿。

Many of the children who come to us survive well with loving and appropriate care, waiting for adoption or other loving long-term homes - and these were all children who arrived having been given less than six months to live. 
很多孩子来到这里后，在我们爱护和专业护理下，都存活了下来，现在他们在等待被收养或已转到其他长期护理机构，虽然所有来到这里的孩子们当初都被预计只有不足六个月的生命期限。

As well as looking after these children, BCH also looks for opportunities to support families who want to care for their dying child at home. 
在照顾护理这些儿童的同时，蝴蝶之家一直致力于寻找机会能真正支持到有需要的家庭。

What we have done ：
我们已经完成的工作有：

1.	We have cared for 200 children of which around half survived. Around 20 children have thrived and been adopted. 
我们至今已经照顾了200名重症孤残儿童，近一半重获新生，其中近20名儿童已基本痊愈或被家庭收养。
2.	We cooperated with the Nanjing Children Welfare Centre to establish and set up a children’s palliative care project, using the model developed in Changsha.
       2013年与南京儿童福利中心合作，复制了长沙蝴蝶之家模式，合作建立了一个儿童舒缓护理项目。
3.	Organized and hosted the first Children’s Palliative Care conference held in China. This was a success, attended by over 100 delegates with a mix of professionals and non-professionals from all over China.
      2015年组织举办了国内首届中国儿童舒缓护理（临终关怀）研讨会。会议很成功，有百余名医疗专业及非专业的国内各界代表参会。
4.	Organising and hosting the 2nd  Children’s Palliative Care conference to be held in Shanghai in Nov. 2016 
        2016年11月份在上海举行的第二届中国儿童舒缓护理（临终关怀）研讨会。
5.	Commissioned and assisted in filming the first educational video in Chinese language, to promote the concept and benefits of palliative care for children. 
投资拍摄了国内第一部儿童临终关怀的公益短片，来推广儿童舒缓护理的理念和内容。

6.	Commissioned the translation from English to Chinese of children’s palliative acre policies and guidelines with the help of staff at the Shanghai Children Medical Center.
在上海儿童医学中心专家们的帮助下，完成了从英国引进的儿童舒缓护理的相关医疗培训资料的中文翻译。

7.	In recognition of the work of the charity, our founder and CEO Lyn has received many honours, including: Honorary Executive Member of the Council for the China Life Care Association; Board membership of ICPCN (International Children’s Palliative Care Network); British award of Member of the British Empire (MBE), 2017.
由于蝴蝶之家的工作得到了越来越多的认可，因此创始人及董事长金林女士获得了多项殊荣：其中包括中国生命关怀协会荣誉常务理事， 国际儿童临终关怀舒缓护理国际组织会员，荣授大英帝国皇家员佐勋章（MBE)。

More recently, BCH has broadened its efforts to support more families and children by networking with other NGO’s, palliative care organisations and individuals worldwide. 
最近，蝴蝶之家正努力与国内外的公益组织，儿童舒缓护理机构和专家加强合作共同推进儿童舒缓护理入户服务，直接帮助有需要的孩子和家庭。

It is our aim for the Butterfly Children's Hospices model to be become the beacon of children's palliative care in China, where the voice of the child is at the centre of every decision made. 
蝴蝶之家的目标就是希望做国内儿童舒缓护理的先行者，作为这些孩子争取生命权益的呐喊者。

To promote excellence in children’s palliative and hospice care in China through leadership, collaboration, advocacy, and education. 
通过示范，合作，倡导及培训的方式促进国内的儿童舒缓护理及临终关怀服务的推广。
8. 完成国际儿童舒缓护理组织的免费线上课程的教学资料英翻中工作。